European Joint Programme on Rare Diseases (EJP RD) Call for Proposals 2021

The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear future benefit for patients.

Topic: Social sciences and Humanities Research to improve health care implementation and everyday life of people living with a rare disease

Research proposals should cover at least one of the following areas

• Health & social care services research to improve patient and familial/household health outcomes
• Economic Impact of Rare diseases
• Psychological and Social Impact of Rare diseases
• Studies addressing the impact/burden of the delay in diagnosis and of the lack of therapeutic intervention.
• e-Health in rare diseases: Use of innovative technology systems for care practices in health and social services
• Development and enhancement of health outcomes research methods in rare diseases
• Effects of pandemic crisis and the global outbreak alert and response on the rare disease field, and the emergence of innovative care pathways in this regard.

CIBER elegibility: CIBER or CIBERNED. Team members applying to the call must be from at least two groups belonging to CIBER in two different home institutions and one of these two should be a Hospital, primary health care or public health administration of the Spanish National Health System (SNS) or Accredited Health Research Institutes (Institutos de Investigación Sanitaria acreditados, IIS). Please contact Cristina Rodríguez ([email protected]) for more information related to CIBER’s eligibility.

Budget: Maximum funding per awarded Spanish project partner

• Up to 175,000 € per partner (overheads included)

• Up to 250,000 € per coordinator ((overheads included)

Timing:

There will be a two-stage submission procedure for joint applications: pre-proposals and full proposals.  16^th February 2021 pre-proposal

More information:

https://www.ejprarediseases.org/index.php/ejprd-jtc2021/